Why I Blog (About Fibromyalgia, Chronic Pain and Invisible Illness)

I have been blogging for a couple of years now and recently someone asked me “why do you blog? What do you get out of it?”

It was a good question, so I thought I’d write a post about my reasons for blogging and what I hope to achieve with this blog site

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Image by TeroVesalainen from Pixabay

Education

When I first started to blog, I wrote about my total hip replacement because I’d had problems trying to find first-person accounts of undergoing that particular type of surgery, especially for someone who was in their 50’s. Hip replacements seem to be done on mostly older folks (in their 70’s or older) but rarely on the younger set, unless you’ve been born with a hip problem or have suffered a devastating injury. 

Because I was only 54 when I had my hip replacement done, I was considered “unusual” by my surgeon (and yes, I’m sure he meant my hip only and not me in general!) so trying to find others in the same position was difficult. I had read enough websites to understand the technical side of the surgery, but I wanted to find out what it was like to actually have the surgery and then recuperate and go on with life. 

Since I was unable to find a lot of good information, I decided to write about my own experiences, so others in my position might be able to find what I was looking for. Once I’d written about that, it seemed natural to go on and talk about other health issues I live with and how they impact my life. From there, the blog site grew organically and became what it is now – a place for articles and posts about Fibromyalgia, Chronic Pain, Chronic Fatigue and Invisible Illnesses, such as Lupus, MS, Arthritis, POTs, Ehler’s Danlos Syndrome and more. 

The goal has been achieved and I’m proud of what I’ve been able to create with this site. I hope others feel the same. 

Compassion

Living with a Chronic Illness is hard work. People with Chronic Pain and Invisible Illness are often left feeling isolated, and when you find someone online who speaks your language, it can be like finding an oasis in the desert. 

In addition to educating people, I wanted this blog site to be a place where comments could be left freely, allowing people the opportunity to share what’s going on in their lives in a safe way. When readers have identified with a particular post, their comments reflect their own lives and situations and I take that seriously. I often respond back, not always in the comment section, but in-person to what they’ve said.

My responsibility as a writer is to ensure that not only am I educating people but I’m giving them some hope as well. Life with Chronic Illness is painful physically and mentally and when you find a spot online that reflects your own thoughts and ideas and connects with you, there’s a genuine freeing sensation. You feel less alone in the world and you realize that other people “get it”. Being understood is an amazing feeling and us Chronic Pain Warriors don’t always feel understood. 

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Image by Gerd Altmann from Pixabay

Volunteering

In many ways, I see writing this blog as another form of volunteering that I do. My focus on health and wellbeing extends beyond this blog site, but I consider the site to be one of service to others. 

Like my other volunteer roles, I receive no compensation for producing this site, with the exception of any money I might make with Affiliate Marketing (more about that in a minute). I do this purely because I want to help others who are in Chronic Pain and who feel lost and alone and in need of information that might help make their lives better. 

My other volunteer roles include committee work for Surgical Quality Improvement, improving Clinical Resources for Patients such as updating Patient Information Sheets received when you are discharged from an ER and Laboratory Quality Control to ensure that Patients are receiving the best care possible when they are providing lab samples for doctor-ordered tests. I also sit on a Provincial Measurement Working Group that is creating a survey for Patients in British Columbia, Canada to ensure that their care received has been the best it can be. 

These roles, together with this blog, give me ample ways to help others, and that brings a lot of happiness to my soul. 

 

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Image by John Hain from Pixabay

Helping Myself

My final reason for blogging is purely selfish…I do this for me as well. It’s therapeutic to be able to write about what’s new in health care, or what I’ve been thinking about a certain subject. I love being able to tackle controversial subjects or bring emotional issues to light, such as intimacy when you are Chronically Ill. 

I consider myself lucky to be in a position where I can have some influence over others and perhaps introduce them to a treatment they haven’t heard of before. There’s nothing quite as satisfying as hearing back from someone who says “you changed my life” or “I really needed to read this”. It makes up for the research, the typing on days when my hands hurt and the work of coming up with new topics that will be of interest.

If you are a blogger, you understand what I’m talking about. If you are a reader, just let me say that having responsibility for you and what I’m producing for you is an honour I don’t take lightly. I want to make sure you’re getting information that benefits you and your health because I know what it’s like to live with Chronic Illness and I know the types of things that I’d like to read and learn from. 

Thank you for allowing me to share these thoughts with you. I appreciate your comments below, or you can always write to me using the Contact Form. 

I do this because I love it. I love sharing and helping others and I hope I’m able to continue for a long time to come. Remember…

There Is Always Hope

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18 thoughts on “Why I Blog (About Fibromyalgia, Chronic Pain and Invisible Illness)

  1. I love all your reasons for blogging. I have also dealt with numerous health issues and at times felt so alone. It’s helpful that you provide so much needed info for individuals dealing with medical issues.

  2. Oh Pam, you are such a light in this world! Thank you for reaching out and caring for people who suffer and find hope and understanding through your blog! I am cheering you on and am inspired by your commitment and selfless desire to simply help people who are hurting in this world!

  3. You are doing the world a great service by opening up about your chronic illness and for creating a space for others to share and learn. It’s an amazing gift to feel connected to those that share in our struggles and who can celebrate our accomplishments.

  4. You found your “Why!” I love this post, honest and heartfelt. You are doing a great thing for so many people. Just knowing that they are not the only one, and having a resource is amazing.

  5. And what a fantastic job you do, Pamela! “If you are a reader, just let me say that having responsibility for you and what I’m producing for you is an honour I don’t take lightly” – that’s a good way to look at it, and you’re right. I think I blog for similar reasons, like educating, supporting, some for myself. A mixture is good as there’s more motivation to keep going through the tough times as blogging can be very intesinvie and exhausting when dealing with chronic illness, but also priceless and rewarding.
    Caz xx

  6. Places of community and connection are so important. Knowing there are others out there with you in a similar place can be extremely uplifting and even healing. Thanks for sharing.

  7. It’s so important we share our stories and experiences! It really does help to remind all of us that we aren’t alone.

    I felt incredibly isolated aftermy Graves Disease diagnosis. It’s also the reason I started blogging. And connecting with others who have similar experiences was a godsend. Keep sharing your goodness! It makes a difference ♡

  8. Since blogging I have been amazed at how many people suffer chronic illness but more pertinent how upbeat and how they make the best of what life has thrown their way..so inspiring and humbling 🙂

  9. Great post. I had my total left hip replacement at 21 years old. Will undoubtedly need more in the future, and other surgeries. I will be sharing my hip replacement story soon on my page. It will more than likely be the first post in my upcoming Story Time series.

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