Interview October – Melissa Temple

I’m pleased to announce that Melissa Temple is my next guest for Interview October. Let’s read what this lovely lady has to say:

Introduce yourself and tell us a bit about you… 

Hi. My name is Melissa Temple. I am 40 years old. I am a disability, fibromyalgia, chronic illness and Disney blogger. I am married and have 1 child. I had a blog called HappyFibroGirl but wanted to do more than fibro. So with my husband of 19 years we started Disabled Disney. 

Chronic illness(es)/disabilities I have…

Osteo-Arthritis, Fibromyalgia, Depression, Anxiety, Type 2 Diabetes, Asthma, Endometriosis.

My symptoms/condition began…

I had arthritis symptoms in my 20’s but wasn’t diagnosed until my 30’s. My fibro symptoms really started after having knee surgery and a hysterectomy from severe endometriosis. 

My diagnosis process was…

I went to my primary care and told her about all my pain. She said she was pretty sure I had fibromyalgia. She sent me to pain management. The pain management doctor agreed. 

The hardest part of living with my illness/disabilities is… 

Not being able to do everything I used to be able to do. I can’t hardly walk or stand anymore. I used to dance, hike, swim, and do so many physical things! I used to be a Certified Nursing Assistant (CNA) but I had to stop because I couldn’t stand anymore for long periods.

A typical day for me involves… 

Medications when I wake up..doing some posting on social media for my blog..and eating breakfast…then a nap…then more meds and some more work on my blog and lunch…then another nap…then some more work on the blog if I’m feeling up to it…then more meds and dinner….then watching tv until bed….then more meds…then bed…

The one thing I cannot live without is… 

My husband, my cell phone and my muscle relaxers. My husband is my reason to keep pushing and going, he is my light in the dark and the love of my life. My cell phone is where I do a lot of my blog stuff. It also keeps me connected to the outside world when I am very isolated at home. My muscled relaxers…if I don’t take them I can’t move. 

Being ill/disabled has taught me… 

Really enjoy everything because you may not always have it and you won’t know your about to lose it!

What advice would I give someone recently diagnosed…

Be an advocate for yourself. Yes the doctors have gone to school but you know yourself and you have to live your life…they don’t. 

My support system is…

My hubby, my daughter and all my fibro friends on Facebook and my blogger friends on Twitter.

If I had one day symptom/disability-free I would… 

I would dance, go hiking, run and jump…I would go walking around a mall….I would volunteer and be out!

One positive of having a chronic illness/disability is…

It really shows you who cares about you. 

My social media links are:

Website/blog: www.disableddisney.com

Instagram: www.instagram.com/disableddisney

Twitter: www.twitter.com/disableddisney

Pinterest: www.pinterest.com/disableddisney

Facebook: www.facebook.com/disableddisney

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Interview October – Michelle Curtis

It’s time for the annual series I run on There Is Always Hope called Interview October. I have spent time asking questions about health conditions that these amazing people are living with, and their replies help bring education and hope to my readers.

Today, we’re meeting my dear friend Michelle Curtis who runs the blog site The Zebra Pit. Let’s hear her story!

Include a photograph of yourself:

Introduce yourself and tell us a bit about you…

Hello! I’m a 47 year old queer disabled woman living in greater Cincinnati. I live a housebound life due to my conditions. Though I am completely disabled by my conditions, I work from home doing freelance writing and managing two websites. Lately, I’ve been working on reviving my creative writing career as a poet and fiction writer, as I’ve managed to improve my cognitive deficits enough to go back to writing and editing some shorter works.

I have been happily married for over 13 years and have a grown stepson whom I love very much, but get to see very little. I am an avid fan of the arts (both high brow and pop), music and nature and consider myself a lifelong learner. I am a huge fan of sci-fi and fantasy, love to learn about astronomy, archeology and science, and spent much of my life protesting the abuse of marginalized peoples and our planet.

I hold a BA in women, gender and sexuality studies with minors in ethnic studies and creative writing and a master of fine arts degree in creative writing. Prior to becoming disabled by my conditions, I worked as everything from a cab driver to a college instructor and have experience in the fields of education, communications, business administration, human resources, healthcare and non-profits, not to mention my illustrious career in retail and banking prior to going to college. 

One fascinating fact about me is:

This is always a hard question for me. I think all people are fascinating when you get to know them. I guess the thing that people are usually fascinated the most with is that almost nothing about me is considered conventional: I have disabling genetic disorders, I am neurodivergent, atheist yet spiritual, pansexual and feminist.

Chronic illness(es)/disabilities I have…

I am what is known as a Trifecta Zebra, as I have a trio of rare illnesses that are often seen together; Hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS). I also have gastroparesis, IBS, Fibromyalgia, ME/CFS, Dystonia, cognitive dysfunction with significant memory loss (both long and short term), coronary arterial spasm,  degenerative disc disease, osteoarthritis, CRPS in my right leg, endometriosis, and intractable migraine. I strongly suspect and am seeking diagnosis for chairi and/or craniocervical instability and autism. 

My symptoms/condition began…

As a child, though my symptoms wouldn’t become really apparent until early adulthood.  

My diagnosis process was… 

Fraught with misdiagnoses and errors. Despite my many health problems which I reported to every doctor, I was not diagnosed with EDS until I was almost 45. I was first diagnosed with fibromyalgia around age 40 and CSF a couple of years later. A couple of years after that, I was diagnosed with POTS. I had to find EDS and MCAS, figure out that I had them and then find doctors to diagnose and begin treating them. 

The hardest part of living with my illness/disabilities is…

The cognitive dysfunction. I had developmental delays as a child and everyone thought I was just plain stupid and wouldn’t do much in life. I had terrible self-esteem and no faith in my abilities. I didn’t figure out I was probably pretty smart until my mid-twenties and finally went to college because I simply couldn’t manage doing the only sorts of jobs I could get, those with a high level of physical labor.

I spent years working toward a career I thought would save me and that I loved more than I could ever imagine allowing myself to love anything. By the time I was done, I no longer had the cognitive ability left to actually do the work I’d been trained for, even if I could find ways to accommodate my deteriorating tissues.

I’m glad I’ve found new things to consume my life with and I can’t say I regret the journey. But the knowledge that I could have had a brilliant career had I the capacity to go on is sometimes too much psychic pain to bear. These days I try very hard to focus on what I can accomplish and find focusing on the present helps me to avoid these hard truths.

A typical day for me involves…

I like to say I live on tilt, because I quite literally have to. If I spend too much time in the upright position, I suffer terrible pain and cognitive symptoms and sometimes have seizures. If I’m flat on my back, I develop pain in the back of my head. So I spend much of my day tilted back in a recliner, working on my blogs and writing, trying to avoid the pain caused by being completely upright or completely prone.

Most of my time spent upright is to cook (I cannot tolerate processed foods at all), do therapies and keep up my movement routines of recumbent bike riding and strengthening exercises. In the evening, I try to relax in front of the TV or with a good book. 

 The one thing I cannot live without is…

Myofascial therapy! I’d be in so much pain if not for it!

Being ill/disabled has taught me…

Never to judge other people’s lives or make assumptions about why someone does something.

My support system is…

My husband is my primary source of support, but we both have chronic health conditions so things can get pretty hairy from time to time, but we usually manage! The remainder of my support comes from within the chronic illness/spoonie community.

I know there are any number of people I can turn to for emotional support or needed advice regarding my health and wellness. I would be lost without them, as I have few others in my life.

If I had one day symptom/disability-free I would…

It would be a lot like Ferris Buehler’s Day Off without the teen angst! A great deal of sightseeing, dancing and celebrating of life, topped off by an exciting and romantic evening of a show, an amazing dinner, more dancing and a carriage ride around Fountain Square. 

One positive of having a chronic illness/disability is…

It’s made me take responsibility for my mental health and taught me what real support looks like, allowing me to walk away from all the toxic people in my life.

One final thing I want people to know is: 

No matter how bad things get, there’s always the possibility that things will get better, as long as you keep fighting. I spent years so inundated by symptoms and disabled by my health that I could no longer see the point of living. I nearly took my own life.

I’m so glad I managed to pull myself out of that deep depression, because it turns out I have quite a lot of life left in me. How did I succeed? I started saying yes to anything that I thought could help, searching exhaustively for solutions. It worked! I found my correct diagnoses and ways to treat my pain and symptoms that affords me a life I can live with.

Now I also have some joy and a sense of my own strength. I may not have beat chronic illness, but I am doing a pretty good job of not letting it defeat me and helping others to also find things to help them.

My links are:

https://zebrapit.com a health and wellness site for spoonies and zebras

https://mykiewritesit.blog a site to display my writing services, poetry and short stories, and discuss writing and blogging strategies and techniques.

7 Conditions That Can Mimic Fibromyalgia (And Getting The Right Diagnosis)

Fibromyalgia is a condition that consists of widespread muscle pain, cognitive failures and fatigue. Because there is no standard blood test or other medical test to identify Fibro, doctors rely on Patient stories and history to make a determination, along with using the “tender point” test.

When you have Fibromyalgia, there are particular tender points that may be inflamed in 18 areas of your body. If you have pain in 11 of these areas, you are considered to have Fibromyalgia.

Tender_points_fibromyalgia_svg.svg

What happens if you are experiencing symptoms of Fibromyalgia but you DON’T have the tender points? It could be that something else is going on in your body that isn’t Fibro but is a different condition all together.

Here are some of the conditions that can mimic Fibro and a brief description of what each of them are:

Conditions

1. Multiple Sclerosis

MS is currently classified as an autoimmune disease of the central nervous system (brain, spinal cord). The disease attacks myelin, the protective covering of the nerves, causing inflammation and often damaging the myelin. Myelin is necessary for the transmission of nerve impulses through nerve fibres. If damage to myelin is slight, nerve impulses travel with minor interruptions; however, if damage is substantial and if scar tissue replaces the myelin, nerve impulses may be completely disrupted, and the nerve fibres themselves can be damaged.

MS is unpredictable and can cause symptoms such as extreme fatigue, lack of coordination, weakness, tingling, impaired sensation, vision problems, bladder problems, cognitive impairment and mood changes. Its effects can be physical, emotional and financial. Currently there is no cure, but each day researchers are learning more about what causes MS and are zeroing in on ways to prevent it.

2. Lupus

Lupus is a systemic autoimmune disease that occurs when your body’s immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.

The signs and symptoms of lupus that you experience will depend on which body systems are affected by the disease. The most common signs and symptoms include:

  • Fatigue
  • Fever
  • Joint pain, stiffness and swelling
  • Butterfly-shaped rash on the face that covers the cheeks and bridge of the nose or rashes elsewhere on the body
  • Skin lesions that appear or worsen with sun exposure (photosensitivity)
  • Fingers and toes that turn white or blue when exposed to cold or during stressful periods (Raynaud’s phenomenon)
  • Shortness of breath
  • Chest pain
  • Dry eyes
  • Headaches, confusion and memory loss

3. Arthritis

Arthritis is the swelling and tenderness of one or more of your joints. The main symptoms of arthritis are joint pain and stiffness, which typically worsen with age. The most common types of arthritis are osteoarthritis and rheumatoid arthritis.

Osteoarthritis causes cartilage — the hard, slippery tissue that covers the ends of bones where they form a joint — to break down. Rheumatoid arthritis is a disease in which the immune system attacks the joints, beginning with the lining of joints.

Uric acid crystals, which form when there’s too much uric acid in your blood, can cause gout. Infections or underlying disease, such as psoriasis or lupus, can cause other types of arthritis.

The most common signs and symptoms of arthritis involve the joints. Depending on the type of arthritis you have, your signs and symptoms may include:

  • Pain
  • Stiffness
  • Swelling
  • Redness
  • Decreased range of motion

4. Complex Regional Pain Syndrome

Complex regional pain syndrome (CRPS) is a chronic (lasting greater than six months) pain condition that most often affects one limb (arm, leg, hand, or foot) usually after an injury.  CRPS is believed to be caused by damage to, or malfunction of, the peripheral and central nervous systems.

The central nervous system is composed of the brain and spinal cord; the peripheral nervous system involves nerve signaling from the brain and spinal cord to the rest of the body.  CRPS is characterized by prolonged or excessive pain and changes in skin color, temperature, and/or swelling in the affected area.

The key symptom is prolonged severe pain that may be constant.  It has been described as “burning,” “pins and needles” sensation, or as if someone were squeezing the affected limb.  The pain may spread to the entire arm or leg, even though the injury might have only involved a finger or toe. In rare cases, pain can sometimes even travel to the opposite extremity.  There is often increased sensitivity in the affected area, known as allodynia, in which normal contact with the skin is experienced as very painful.

People with CRPS also experience changes in skin temperature, skin color, or swelling of the affected limb.  This is due to abnormal microcirculation caused by damage to the nerves controlling blood flow and temperature.  As a result, an affected arm or leg may feel warmer or cooler compared to the opposite limb.  The skin on the affected limb may change color, becoming blotchy, blue, purple, pale, or red.

Other common features of CRPS include:

  • changes in skin texture on the affected area; it may appear shiny and thin
  • abnormal sweating pattern in the affected area or surrounding areas
  • changes in nail and hair growth patterns
  • stiffness in affected joints
  • problems coordinating muscle movement, with decreased ability to move the affected body part
  • abnormal movement in the affected limb, most often fixed abnormal posture (called dystonia) but also tremors in or jerking of the limb.

5. Depression

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Depression is a mood disorder that causes a persistent feeling of sadness and loss of interest. Also called major depressive disorder or clinical depression, it affects how you feel, think and behave and can lead to a variety of emotional and physical problems. You may have trouble doing normal day-to-day activities, and sometimes you may feel as if life isn’t worth living.

More than just a bout of the blues, depression isn’t a weakness and you can’t simply “snap out” of it. Depression may require long-term treatment. But don’t get discouraged. Most people with depression feel better with medication, psychotherapy or both. Although depression may occur only once during your life, people typically have multiple episodes. During these episodes, symptoms occur most of the day, nearly every day and may include:

  • Feelings of sadness, tearfulness, emptiness or hopelessness
  • Angry outbursts, irritability or frustration, even over small matters
  • Loss of interest or pleasure in most or all normal activities, such as sex, hobbies or sports
  • Sleep disturbances, including insomnia or sleeping too much
  • Tiredness and lack of energy, so even small tasks take extra effort
  • Reduced appetite and weight loss or increased cravings for food and weight gain
  • Anxiety, agitation or restlessness
  • Slowed thinking, speaking or body movements
  • Feelings of worthlessness or guilt, fixating on past failures or self-blame
  • Trouble thinking, concentrating, making decisions and remembering things
  • Frequent or recurrent thoughts of death, suicidal thoughts, suicide attempts or suicide
  • Unexplained physical problems, such as back pain or headaches

6. Lymphoma

Lymphoma is cancer that begins in infection-fighting cells of the immune system, called lymphocytes. These cells are in the lymph nodes, spleen, thymus, bone marrow, and other parts of the body. When you have lymphoma, lymphocytes change and grow out of control.

There are two main types of lymphoma:

  • Non-Hodgkin: Most people with lymphoma have this type.
  • Hodgkin

Non-Hodgkin and Hodgkin lymphoma involve different types of lymphocyte cells. Every type of lymphoma grows at a different rate and responds differently to treatment.

Warning signs of lymphoma include:

  • Swollen glands (lymph nodes), often in the neck, armpit, or groin that are painless
  • Cough
  • Shortness of breath
  • Fever
  • Night sweats
  • Fatigue
  • Weight loss
  • Itching

7. Growing Pains

Growing pains are recurring pain symptoms that are relatively common in children ages 3 to 12. The pains normally appear at night and affect the calf or thigh muscles of both legs. The pain stops on its own before morning. Growing pains are one of the most common causes of recurring pain in children.

Growing pains usually cause an aching or throbbing feeling in the legs. This pain often occurs in the front of the thighs, the calves or behind the knees. Usually both legs hurt. Some children may also experience abdominal pain or headaches during episodes of growing pains. The pain doesn’t occur every day. It comes and goes.

Growing pains often strike in the late afternoon or early evening and disappear by morning. Sometimes the pain awakens a child in the middle of the night.

Consult your child’s doctor if you’re concerned about your child’s leg pain or the pain is:

  • Persistent
  • Still present in the morning
  • Severe enough to interfere with your child’s normal activities
  • Located in the joints
  • Associated with an injury
  • Accompanied by other signs or symptoms, such as swelling, redness, tenderness, fever, limping, rash, loss of appetite, weakness or fatigue

Conclusion

As you can see, there are several conditions that can mimic the symptoms of Fibromyalgia, which is why it’s important to see your doctor as soon as possible, to get the proper diagnosis. Don’t let pain linger…if something doesn’t seem right in your body, get it checked out. Remember,

There Is Always Hope

chronic pain and addictions (2)

10 Mental Health Habits to Try (That Really Work)

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I am featuring another guest post from my friends at MadebyHemp.com. This article first appeared on their website.

2018 was the year we saw a strong surge of mental health awareness. The public’s focus on health broadened to also include taking care of one’s mental and emotional health. People have finally realized that one of the keys to maintaining a healthy body is to have a healthy mind.

Throughout 2019, mental health awareness will continue to be one of the bigger focuses on overall well being. Learning a few habits that will promote and improve your mental health will be a great start to your fabulous year.

1. Exercise

The secret to a sound body is a sound mind. But it could also work both ways. The secret to a sound mind is a sound body. It might not work for everybody, but for a majority of able-bodied people, a great way to boost endorphins is to go out and move. Find an exercise that you love. You don’t need to do what everyone else is doing. Some people prefer lifting weights, some like yoga, some even run marathons. Find that one exercise you want to stick with and run with it.

10 Mental Health Habits to Try This 2019

2. Gratefulness

Being thankful for the things you have instead of focusing on the things you don’t is a good way of bringing positive energy into your life. It will, more importantly, make you realize you are lucky to have the things you do. Practicing the habit of being grateful will help you become a more positive person.

3. Be kind

Be the person you wish other people would be to you. Make someone’s day by smiling at them, or helping them carry a heavy load, or even just opening the door for someone who has their hands full. A bit of kindness paid forward will cultivate a world of kindness. It doesn’t take much to make others smile.

4. Sleep

Get enough sleep. Sleep can do wonders for a tired mind and body. Don’t overdo it though. Get the right amount of sleep in order to feel rested and ready to tackle your day, every day. Put your screen away close to bedtime and concentrate on relaxing. Give your body and mind the time to recover and recuperate.

10 Mental Health Habits to Try This 2019 - Sleep

5. Hang out with friends

Socialize. Even the most introverted person has someone they prefer to hang around with. It does wonderful things to your soul to share your time with the people that matter.

6. Chocolate

Better yet, try Therapeutic Chocolate with Cannabidiol (CBD) oil.  Cannabinoids are non-psychoactive and can reduce anxiety. If you are looking to incorporate CBD into your diet, but is not very much of a fan of its earthy taste, chocolate is the way to go. Cannabinoids are found to keep the body in neutral state, and support the functions of the brain, as well as the central and peripheral nervous system. Get your chocolate fix for the day, and get CBD’s benefits while you’re at it.

7.  Laugh

When they said laughter is the best medicine, they were not kidding. Laughter helps ease stress and anxiety. Hang out with a funny friend, or watch a comedy show. Or maybe learn a few jokes and share them with your friends. Laughter is one of those things that multiply when shared.

8. Eat well

A few desserts won’t hurt you any but for the most part, feed your body the things it should be fed. Eat a healthy and balanced diet. This will ensure your body will feel healthy and will give you less things to stress or worry about. Avoid things that will harm your body like smoking or excessive drinking.

10 Mental Health Habits to Try This 2019 - Eat Well

9. Love yourself

Tell yourself something nice every day. Most people are generous with giving away compliments to others but are stingy when it comes to themselves. Start your day by giving yourself a sincere compliment. It could be something simple like “oh my skin looks very nice today”. Or “I do make an amazing omelet.” And develop this into a daily habit. Because loving yourself will allow you to love others more freely.

10. Meditate

Give your mind a chance to empty itself out of the negative energy that is pervasive in the world. Give your mind the space to breathe and relax. And as you relax your mind, you relax your body. Meditation is a great way to connect your mind and your body into one plane. It is a good way to relax and to relieve yourself of any stress that you may have. Meditation also complements therapy.

Remember,

There Is Always Hope

10

 

Chronic Pain and Mindfulness Meditation

What does the word meditation mean to you? When you hear it, what is the first thing you think of? Someone sitting with their legs crossed, going “ommmmm”?  Someone doing yoga? A different culture or religion?

Mindfulness meditation can have many meanings, but ultimately, it’s a way of connecting with yourself. It’s a mental training practice that involves focusing your mind on your experiences (like your own emotions, thoughts, and sensations) in the present moment. Mindfulness meditation can involve breathing practice, mental imagery, awareness of body and mind, and muscle and body relaxation.

So what does mindfulness meditation have to do with Chronic Pain? Well, it’s a way of focusing on your body and using the relaxation techniques to reduce pain and tension. With the right amount of practice, you can utilize meditation to counteract against various types of pain including joint pain and nerve pain. Here are some tips and tricks to help you.

Getting Started

Learning mindfulness meditation is straightforward, however, a teacher or program can help you as you start (particularly if you’re doing it for health purposes). Some people do it for 10 minutes, but even a few minutes every day can make a difference. Here is a basic technique for you to get started, from the website Very Well Mind:

1. Find a quiet and comfortable place. Sit in a chair or on the floor with your head, neck, and back straight but not stiff.

2. Try to put aside all thoughts of the past and the future and stay in the present.

3. Become aware of your breath, focusing on the sensation of air moving in and out of your body as you breathe. Feel your belly rise and fall, and the air enter your nostrils and leave your mouth. Pay attention to the way each breath changes and is different.

4. Watch every thought come and go, whether it be a worry, fear, anxiety or hope. When thoughts come up in your mind, don’t ignore or suppress them but simply note them, remain calm and use your breathing as an anchor.

5. If you find yourself getting carried away in your thoughts, observe where your mind went off to, without judging, and simply return to your breathing. Remember not to be hard on yourself if this happens.

6. As the time comes to a close, sit for a minute or two, becoming aware of where you are. Get up gradually.

Breathing

Learning how to breathe sounds so simple, but many of us don’t do it properly. We tend to breathe from the chest instead of the diaphragm, which leads to shallow breaths. Deep belly breathing is preferable and can be easily learned. Try breathing in tune with this Hoberman Sphere:

Mindfulness Meditation for Chronic Pain

 

Guided Meditations

Guided meditations can be an excellent resource to help you connect the mind and body. The good people at Mindful.org have several excellent starters that you can access right here.

For content specific to Chronic Pain, these videos may be helpful for you:

Guided Meditation for Chronic Pain #1

Guided Meditation for Chronic Pain #2

Guided Meditation for Chronic Pain #3

Conclusion

Just a few minutes a day is all it takes to learn this simple practice, but the benefits can last for much longer. Used in conjunction with heat, ice and medications, you may find Mindfulness Meditation to be just the thing to ease your Chronic Pain, one breath at a time. Remember,

There Is Always Hope

 

5 Ways to Handle Fibromyalgia Pain and Stay Energized

I’m pleased to feature this guest post by Kunal Patel, who works with a brand called Copper Clothing.

Fibromyalgia is a disorder characterized by musculoskeletal pain all over the body. It is often accompanied by fatigue, sleep andmood issues, and cognitive concerns like memory problems. There are several ways to cope with the disorder, from having the right diet to wearing the right clothes.

The Pain of Fibromyalgia

Here are 5 practical ways to cope with fibromyalgia.

Exercise Regularly

It may seem impossible to exercise when you have fibromyalgia but it is recommended you do. Exercising will help in relieving symptoms of fibromyalgia, especially with the stiffness and restless leg syndrome.

Light exercises and yoga also help in boosting the mood, reducing fatigue, easing the pain, improving blood circulation and improving sleep. You can go for a walk, do strength training, cycling, water aerobics, and swimming.

However, if you are too fatigued, avoid exercisingthat day.

Good Sleeping Habits

The pain and stress can hinder with your ability to sleep. However, sleep is essential to manage fatigue – the biggest symptom of the disorder. 

Practice good sleep habits like:

    • Reduce the noises and intensity of lights in the bedroom
    • Use light and comfortable bed linens like a copper bedsheet
  • Avoid alcohol, caffeine, and smoking
  • Sleep and wake up at the same time
  • Adopt bedtime rituals like taking a soothing bath or journaling before bedtime

Proper Diet

10 Mental Health Habits to Try This 2019 - Eat Well

Your fibromyalgia diet must include lots of vegetables, fruits, dairy, whole grains, and lean meats. This will improve the overall health, lower weight and energize you. Eliminating sugar, foods containing food additives like MSG, and aspartame will be beneficial.

Wear the Right Clothes

Clothing choices can make a huge difference in managing daily pain and fatigue that comes with fibromyalgia. Those suffering from fibromyalgia suffer from a condition where even the slightest touch can be quite painful. Wearing loose-fitting, non-constricting and lightweight clothing is recommended.

Copper compression clothing is also used to treat fibromyalgia pain and stiffness.This disorder can affect any muscle in the body, however, it is most common in extremities like hands and fingers. Copper compression gloves provide fibromyalgia hand pain relief due to their properties. They fight inflammation, retain warmth, improve blood flow and restore movement in the hand.

Choose cotton or copper socks as they don’t have chemicals, wick away sweat and fight odors. The latter also help in reducing pain in the legs and feet.

Stay Positive

There Is Always Hope

Living with pain and overcoming fatigue is not easy and it can get exhausting. Your mind may play tricks on you and be stuck in a loop that you are not accomplishing anything. However, it will do you no good to ruminate on those things. It is essential that you stay positive.

Do not focus on the things that fibromyalgia is preventing you from doing as it will make you feel worse. It is alright to have a bad day– just focus on getting through each day and celebrate little victories.

Consult with your doctor about the best pain management techniques. Take one day at a time and this disorder can become a lot more bearable.

Author Bio –

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Kunal Patel is a young and passionate entrepreneur, fascinated by the workings of the human body and natural solutions for common health problems. He’s single-minded in his aim to make Copper Defence a brand that’s recognized across the globe, by partnering with global brands to make these high-tech materials easily accessible for everyone.

You Know What Omega-3s Are – But What About Omega-6s?

Today I’m featuring an article by Guest Author Nicole Ross Rollender. Her bio is at the bottom of the page. She’s written an excellent post about Omega-3s and Omega-6s and how important they are for our bodies. When you live with Chronic Pain, you know you need to do everything possible to maintain your overall health, and diet can play a part in that. Read on to see what Nicole has to say:

Positivity Quotes

No doubt you’ve gotten the skinny on good fats (hello, omega-3) from your primary care doctor or nutritionist.

You’ve probably heard this before: Omega-3 fatty acids like EPA (eicosapentaenoic acid) and DHA (docosahexaenoic acid) are found in fish oils from salmon, krill, tuna, trout, mackerel, and sardines, along with oysters and crabs.

Clinical evidence suggests omega-3s like EPA and DHA help reduce risk factors for heart disease, including high cholesterol and high blood pressure, according to the University of Maryland Medical Center.

You’ll find other omega-3s like alpha-linolenic acid (ALA) in flaxseed, oils like canola and soybean, and nuts and seeds such as walnuts and sunflower, according to the Mayo Clinic.

Omega 3 and Omega 6 For Your Good Health

Along with omega-3s, omega-6 fatty acids play a vital role in brain function, and our normal growth and development. 

Bottom line: Your body needs fatty acids to function, and they pack some major health benefits.

However, not as many people have heard of omega-6s. Here’s what you need to know to ensure you’re getting enough (but not too much) of this important fat in your diet.

What Are PUFAs?

Here’s a quick chemistry lesson: Like omega-3, omega-6 is a type of polyunsaturated fatty acid (PUFA), a fat molecule containing more than one unsaturated carbon bond. For example, oils (like olive oil) that contain polyunsaturated fats are liquid at room temperature, but start to turn solid when chilled, according to the American Heart Association.

“Omega-6s are essential for a whole host of things: proper brain function, stimulating hair and skin growth, maintaining bone health, promoting normal growth and development, regulating metabolism, and maintaining a healthy reproductive system,” says Laura Ligos, MBA, RDN, CSSD, a Real Food registered dietitian at Albany, NY-based The Sassy Dietitian & Designed to Fit Nutrition.

PUFAs offer heart-health benefits when you eat them in moderation and use them to replace unhealthy saturated and trans fats in your diet, according to the Mayo Clinic.

There are saturated fats in animal-based foods, such as meats, poultry, lard, egg yolks and whole-fat dairy products like butter and cheese. They’re also in cocoa butter, and coconut, palm and other tropical oils used in coffee creamers and other processed foods.

Trans fats, also called hydrogenated and vegetable oils, are in hardened vegetable fats like stick butter – and make their way into crackers, cookies, cakes, candies, snack foods and French fries.

A good rule of thumb is to reduce foods high in saturated and trans fats in your diet. Instead, choose foods that include plenty of PUFAs – but don’t go overboard.

All fats, even good ones, are high in calories – they’re nine calories per gram.

The Omega-6/Omega-3 Ratio

Humans evolved on a diet balanced in omega-6 and omega-3 (1:1 ratio) essential fatty acids, according to the journal Nutrients. Today, though, the ratio for many people is a staggering 20:1, contributing to weight gain and other health issues.

“The ratio between omega-6 and omega-3 in our bodies should stay between 2:1 and 3:1,” Ligos says. “You’re heading into dangerous territory when your omega-6/omega-3 ratio is greater than 4:1.”

Both a high omega-6/omega-3 ratio and a high omega-6 fatty acid intake contribute to weight gain, whereas a high omega-3 fatty acid intake decreases your risk for weight gain, according to Nutrients.

In addition, when your omega-6/omega-3 ratios are out of balance, you’re at higher risk for cardiac issues, according to the American Journal of Physiology-Heart and Circulatory Physiology

“When there isn’t enough omega-6 in your diet, essential fatty acid deficiency can occur, leading to excessive thirst and skin lesions, as well as more serious issues like stunted growth, skin lesions, a fatty liver, and reproductive issues or failure,” Ligos says.

Conversely, too much omega-6 (and not enough omega-3) can cause inflammatory conditions including heart disease, elevated blood pressure, diabetic neuropathy, autoimmune conditions and more, Ligos notes.

Not all omega-6 fatty acids promote inflammation though, according to the University of Maryland Medical Center.

Linolenic acid, often found in vegetable oils, is converted to gamma-linolenic acid (GLA) in the body. GLA is also found in plant-based oils like evening primrose oil, borage oil and black currant seed oil.

“There’s research to support taking a GLA supplement, an omega-6 fatty acid, to reduce inflammation, much unlike all other omega-6 fatty acids,” Ligos says.

The body converts GLA to DGLA, which fights inflammatory conditions, and having enough other nutrients like magnesium, zinc, and vitamins C, B3 and B6, promotes that conversion, the University of Maryland Medical Center says.

Where to Get Your Omega-6

The good news is most of us can get the right amount of omega-6 from a healthy diet alone.

“Omega-6 fatty acids are found primarily in vegetable and plant oils, including safflower, sunflower, grapeseed, corn, cottonseed, peanut, sesame, soybean and canola,” Ligos says.

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At one time, researchers believed omega-6 fatty acids metabolized in the body to then inflame and damage artery linings, which could lead to heart disease.

After reviewing the findings, the American Heart Association recommended people eat between 5% and 10% of their daily calories from omega-6 fatty acids.

It’s a good idea to replace saturated fats from foods like meat, butter, cheese and deserts with plant-based foods containing omega-6 fatty acids, including vegetables oils, nuts and seeds is a good first step.

Flaxseed and hempseed oil, nuts, borage oil, evening primrose oil and black currant seed oil, and acai are other healthy sources of omega-6.

About The Author:

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Nicole Rollender is a South New Jersey-based editor and writer. Her work has appeared in Good Housekeeping, Dr. Oz The Good Life, Woman’s Day and Cosmopolitan. She’s the author of the poetry collection Louder Than Everything You Love. Recently, she was named a Rising Star in FOLIO’s Top Women in Media awards and is a 2017 recipient of a New Jersey Council on the Arts poetry fellowship. Visit her online at www.strandwritingservices.com; on Facebook or Twitter.

Why I Blog (About Fibromyalgia, Chronic Pain and Invisible Illness)

I have been blogging for a couple of years now and recently someone asked me “why do you blog? What do you get out of it?”

It was a good question, so I thought I’d write a post about my reasons for blogging and what I hope to achieve with this blog site

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Image by TeroVesalainen from Pixabay

Education

When I first started to blog, I wrote about my total hip replacement because I’d had problems trying to find first-person accounts of undergoing that particular type of surgery, especially for someone who was in their 50’s. Hip replacements seem to be done on mostly older folks (in their 70’s or older) but rarely on the younger set, unless you’ve been born with a hip problem or have suffered a devastating injury. 

Because I was only 54 when I had my hip replacement done, I was considered “unusual” by my surgeon (and yes, I’m sure he meant my hip only and not me in general!) so trying to find others in the same position was difficult. I had read enough websites to understand the technical side of the surgery, but I wanted to find out what it was like to actually have the surgery and then recuperate and go on with life. 

Since I was unable to find a lot of good information, I decided to write about my own experiences, so others in my position might be able to find what I was looking for. Once I’d written about that, it seemed natural to go on and talk about other health issues I live with and how they impact my life. From there, the blog site grew organically and became what it is now – a place for articles and posts about Fibromyalgia, Chronic Pain, Chronic Fatigue and Invisible Illnesses, such as Lupus, MS, Arthritis, POTs, Ehler’s Danlos Syndrome and more. 

The goal has been achieved and I’m proud of what I’ve been able to create with this site. I hope others feel the same. 

Compassion

Living with a Chronic Illness is hard work. People with Chronic Pain and Invisible Illness are often left feeling isolated, and when you find someone online who speaks your language, it can be like finding an oasis in the desert. 

In addition to educating people, I wanted this blog site to be a place where comments could be left freely, allowing people the opportunity to share what’s going on in their lives in a safe way. When readers have identified with a particular post, their comments reflect their own lives and situations and I take that seriously. I often respond back, not always in the comment section, but in-person to what they’ve said.

My responsibility as a writer is to ensure that not only am I educating people but I’m giving them some hope as well. Life with Chronic Illness is painful physically and mentally and when you find a spot online that reflects your own thoughts and ideas and connects with you, there’s a genuine freeing sensation. You feel less alone in the world and you realize that other people “get it”. Being understood is an amazing feeling and us Chronic Pain Warriors don’t always feel understood. 

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Image by Gerd Altmann from Pixabay

Volunteering

In many ways, I see writing this blog as another form of volunteering that I do. My focus on health and wellbeing extends beyond this blog site, but I consider the site to be one of service to others. 

Like my other volunteer roles, I receive no compensation for producing this site, with the exception of any money I might make with Affiliate Marketing (more about that in a minute). I do this purely because I want to help others who are in Chronic Pain and who feel lost and alone and in need of information that might help make their lives better. 

My other volunteer roles include committee work for Surgical Quality Improvement, improving Clinical Resources for Patients such as updating Patient Information Sheets received when you are discharged from an ER and Laboratory Quality Control to ensure that Patients are receiving the best care possible when they are providing lab samples for doctor-ordered tests. I also sit on a Provincial Measurement Working Group that is creating a survey for Patients in British Columbia, Canada to ensure that their care received has been the best it can be. 

These roles, together with this blog, give me ample ways to help others, and that brings a lot of happiness to my soul. 

 

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Image by John Hain from Pixabay

Helping Myself

My final reason for blogging is purely selfish…I do this for me as well. It’s therapeutic to be able to write about what’s new in health care, or what I’ve been thinking about a certain subject. I love being able to tackle controversial subjects or bring emotional issues to light, such as intimacy when you are Chronically Ill. 

I consider myself lucky to be in a position where I can have some influence over others and perhaps introduce them to a treatment they haven’t heard of before. There’s nothing quite as satisfying as hearing back from someone who says “you changed my life” or “I really needed to read this”. It makes up for the research, the typing on days when my hands hurt and the work of coming up with new topics that will be of interest.

If you are a blogger, you understand what I’m talking about. If you are a reader, just let me say that having responsibility for you and what I’m producing for you is an honour I don’t take lightly. I want to make sure you’re getting information that benefits you and your health because I know what it’s like to live with Chronic Illness and I know the types of things that I’d like to read and learn from. 

Thank you for allowing me to share these thoughts with you. I appreciate your comments below, or you can always write to me using the Contact Form. 

I do this because I love it. I love sharing and helping others and I hope I’m able to continue for a long time to come. Remember…

There Is Always Hope

Chronic Pain And Intimacy (And How To Spice Up Your Life)

Note: This post contains Affiliate Links which pay me a small percentage of your purchase price at no cost to you.

When you live with Chronic Pain, everything you do becomes a new challenge. Working, socializing, taking care of kids and/or a home – you still need to do it all and live your life, but now you have persistant pain as your constant companion. Often, you find yourself compromising or looking for better ways of doing things, so your pain isn’t exacerbated.

One of the areas of life with Chronic Pain which is often not talked about is intimacy and your sexual well-being. These are crucial components of a good relationship, but what happens when pain causes you to withdraw from sexual relations, and intimacy begins to suffer? Let’s talk about some of the reasons this happens and what can be done.

Difficulties with intimacy may stem from various causes, including increased pain during sexual activity, a lack of arousal and accompanying vaginal dryness, the inability to reach orgasm, side effects from the use of opioids and other commonly-used medications (eg, certain antidepressants), a past history of sexual abuse, and issues with communication in general.

Because of Chronic Pain, you may find your overall relationship has begun to suffer. A partner may withdraw from you because they don’t know how to help you. This translates to the bedroom, where they may be afraid to cause you more pain or they’re dealing with their own issues regarding your health. Perhaps your partner has become resentful of the extra burden placed on them with your inability to do certain chores now.

A change in standard routines can be upsetting for everyone and this may cause extra fatigue for you both, which also causes you to withdraw from intimacy. Sleep may be what you crave the most, and when your partner wants to have sex, it’s the last thing on your mind.

So how do you overcome these issues? What do you do to make sex more enjoyable for both of you? Here is an expanded list of ideas from a previous post that might be a good starting point.

  • Talk. Make a point of talking openly and honestly about what you are feeling. If there is fear about pain, talk about it and what you can do to alleviate any extra. If you feel disconnected from your partner because it’s been a long time since you last were intimate, talk about those feelings and what you’re worrying about. Do you have scars or extra weight that is causing you concern? Be honest about how you feel. It can be very vulnerable to speak the truth, but it often brings you closer to your partner in the long run.
  • Touch. Exploring your partner’s body through touch is an exciting way to express your sexual feelings. This can include holding hands, cuddling, fondling, stroking, massaging and kissing. Touch in any form increases feelings of intimacy.
  • Self-stimulation. Masturbation is a normal and healthy way to fulfil your sexual needs. One partner may use masturbation during mutual sexual activity if the other partner is unable to be very active.
  • Oral sex. It can be an alternative or supplement to traditional intercourse.
  • Toys. Use of various sex toys can help loosen inhibitions, relax the body and make intercourse more enjoyable.
  • Different positions. Lie side by side, kneel or sit. Look in your library or bookstore for a guide that describes and illustrates different ways to have intercourse. If you’re embarrassed to get this kind of book locally, try an online book retailer.
  • Vibrators and lubricants. A vibrator can add pleasure without physical exertion. If lack of natural lubrication is a problem, over-the-counter lubricants can prevent pain from vaginal dryness.
  • Pillows and wedges. Make use of pillows and wedges to help find comfortable positions that alleviate pressure points. A good sex shop can help you find products specifically made for this purpose.
  • Change your expectations. Because reaching orgasm can be almost impossible when you are on certain medications, you may find changing your expectations for sex will help you enjoy lovemaking more. Don’t make orgasm the ultimate goal…just enjoy sex for what it is – a pleasurable experience.
  • Ask for what you need. Listen to your body and what it’s telling you during sex. If certain activities make you feel better, do more of that. Lovemaking doesn’t always have to end in intercourse. Oral sex during a lovemaking session may be all that you desire, and there’s nothing wrong with that.
  • Prepare in Advance. It’s important for people with Chronic Pain to understand that sexual activity often takes a lot of planning. There is not as much spontaneity as there used to be. You may find you need to take your pain medication, apply heat, or stretch before sexual activity. This is also a good time to try increasing your arousal by reading erotica, watching a video, or having your partner give you a massage in the area of your pain.
  • Timing. Choose a time of day when you have less pain as a time to be sexually active. For some people as the day goes on, the pain gets worse, but the opposite also may be true for others. If you have kids, you may have to sneak away for a quickie, but even that is better than no sex at all. If you can arrange for the kids to be away overnight, it gives you plenty of time to relax and set the stage for intimacy.

Sex is meant to be a natural part of a relationship. Just because you live with Chronic Pain doesn’t preclude you from being able to enjoy lovemaking with your partner. You might want to try some of these products to bring a new spark to your bed (or living room or bathroom or…)

Kiss Me Massage Oil

Chronic Pain And Intimacy (And How To Spice Up Your Life)

Lynk Anal Lubricant

Chronic Pain And Intimacy (And How To Spice Up Your Life)

Kegel Exercisor and App

Chronic Pain And Intimacy (And How To Spice Up Your Life)

Female Stimulant

Chronic Pain And Intimacy (And How To Spice Up Your Life)

Personal Wand Massager

Chronic Pain And Intimacy (And How To Spice Up Your Life)

Personal Portable Vibrator

Chronic Pain And Intimacy (And How To Spice Up Your Life)

Love Worth Making – an Intimacy Book

Chronic Pain And Intimacy (And How To Spice Up Your Life)

Remember,

There Is Always Hope

3 Important Lifestyle Changes (That Can Improve Your Overall Health)

Today’s post is from Guest Author Amanda Lasater. She’s bringing us information on important Lifestyle changes that can help improve your overall health.

For those of us suffering from Chronic Pain, Chronic Fatigue, or an Invisible Illness, it can feel like you’ve tried pretty much everything to improve your mental and physical well-being. Whether we’re trying a new “miracle” treatment in traditional medicine or an “ancient” holistic therapy, it’s easy to simply feel defeated by our illness. And, like with all illnesses, there will likely never be a one-size-fits-all treatment for these conditions – however, there are lifestyles changes that have been shown to significantly help improve the quality of life for those suffering from many of these life-altering illnesses. The following list contains three powerful choices in your day to day life that, over time, can help reduce the physical and mental anguish that comes along with these maladies.

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Incorporate CBD Oil Into Your Supplement Regimen

Due to the relatively new popularity of CBD oil, we don’t have enough long-term studies to make any definitive statements about its efficacy as a treatment for chronic pain, fibromyalgia, and other invisible illnesses. However, the studies we do have, combined with personal testimonies, are extremely promising. CBD – short for cannabidiol – is extracted from the cannabis plant, but it does not have any of the psychoactive properties of THC (aka, it doesn’t get you “high”). Currently, it is being used for a large number of medical purposes, including:

  • Chronic pain and inflammation
  • Epilepsy, especially in children
  • Social anxiety disorder
  • Insomnia
  • Bipolar disorder
  • Multiple sclerosis
  • Parkinson’s disease
  • Schizophrenia

So far, CBD has been shown to help with three major symptoms of many invisible illnesses: pain, anxiety, and insomnia. And for many suffering from any of these conditions, relief from even just one of these symptoms would significantly improve their quality of life. We recommend that you research CBD and your specific illness to identify all the potential benefits and decide upon which brand and dosage is best for you.  

Address Your Microbiome And Gut Health

The gut “microbiome” is what we call the highly important collection of more than 100 trillion microscopic organisms, or microbiota, that live inside our gastrointestinal tract. These organisms, which include bacteria unique to your body, play a vital role in our health by contributing nutrients and energy, protecting against infection, and supporting the immune system. In addition, we’ve discovered that these trillions of bacteria in our gut communicate directly with the neurons in our brains. More and more studies have found a link between the condition of the microbiome and many illnesses including

  • Inflammatory Bowel Diseases (IBD)
  • Fibromyalgia
  • Depression
  • Anxiety
  • Chronic Pain
  • Autoimmune disorders

Often accompanying gut dysbiosis is an overgrowth of candida (a fungus or yeast), which releases toxic byproducts into your bloodstream and causes a host of unpleasant symptoms. Many doctors report that most fibromyalgia sufferers have had Candida overgrowth. The bottom line is that the gut biome is essential to our health – and addressing and improving your gut health can improve many symptoms of invisible illnesses. The best ways to improve your gut bacteria include eating probiotic foods, eating fiber and prebiotics, avoiding antibiotics (unless absolutely necessary), quitting smoking, reducing alcohol intake, avoiding excessive sugar consumption, exercise, and eating gut-friendly foods like bone broth. 

Start An Elimination Diet To Identify Food-Related Health Issues

The food you’re eating may be the cause of many of your symptoms. For example, gluten has been linked to over 55 diseases. In fact, the major symptoms of gluten intolerance are neurological – not digestive. These common symptoms include: 

  • Chronic pain
  • Chronic fatigue
  • Depression 
  • Cognitive impairment 
  • Sleep disturbances

Gluten intolerance is identified as one of the possible root causes of fibromyalgia by many practitioners of functional medicine – a branch of medicine that aims at treating the underlying cause of an issue instead of the symptoms. The best way to identify if you have any allergies or intolerances is to start an elimination diet and introduce foods one at a time.

While we have all felt defeated by our illnesses, we’ve also learned the importance of always keeping our head up and moving forward. We’re here to tell you that you’re not alone – use these three lifestyle changes to drastically improve your quality of life and “keep on swimming.”

About The Author

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Amanda Lasater is on the editorial and research team at MattressAdvisor.com, a mattress reviews site with the mission to help each person find their best sleep ever.