Why I Blog (About Fibromyalgia, Chronic Pain and Invisible Illness)

I have been blogging for a couple of years now and recently someone asked me “why do you blog? What do you get out of it?”

It was a good question, so I thought I’d write a post about my reasons for blogging and what I hope to achieve with this blog site

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Image by TeroVesalainen from Pixabay

Education

When I first started to blog, I wrote about my total hip replacement because I’d had problems trying to find first-person accounts of undergoing that particular type of surgery, especially for someone who was in their 50’s. Hip replacements seem to be done on mostly older folks (in their 70’s or older) but rarely on the younger set, unless you’ve been born with a hip problem or have suffered a devastating injury. 

Because I was only 54 when I had my hip replacement done, I was considered “unusual” by my surgeon (and yes, I’m sure he meant my hip only and not me in general!) so trying to find others in the same position was difficult. I had read enough websites to understand the technical side of the surgery, but I wanted to find out what it was like to actually have the surgery and then recuperate and go on with life. 

Since I was unable to find a lot of good information, I decided to write about my own experiences, so others in my position might be able to find what I was looking for. Once I’d written about that, it seemed natural to go on and talk about other health issues I live with and how they impact my life. From there, the blog site grew organically and became what it is now – a place for articles and posts about Fibromyalgia, Chronic Pain, Chronic Fatigue and Invisible Illnesses, such as Lupus, MS, Arthritis, POTs, Ehler’s Danlos Syndrome and more. 

The goal has been achieved and I’m proud of what I’ve been able to create with this site. I hope others feel the same. 

Compassion

Living with a Chronic Illness is hard work. People with Chronic Pain and Invisible Illness are often left feeling isolated, and when you find someone online who speaks your language, it can be like finding an oasis in the desert. 

In addition to educating people, I wanted this blog site to be a place where comments could be left freely, allowing people the opportunity to share what’s going on in their lives in a safe way. When readers have identified with a particular post, their comments reflect their own lives and situations and I take that seriously. I often respond back, not always in the comment section, but in-person to what they’ve said.

My responsibility as a writer is to ensure that not only am I educating people but I’m giving them some hope as well. Life with Chronic Illness is painful physically and mentally and when you find a spot online that reflects your own thoughts and ideas and connects with you, there’s a genuine freeing sensation. You feel less alone in the world and you realize that other people “get it”. Being understood is an amazing feeling and us Chronic Pain Warriors don’t always feel understood. 

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Image by Gerd Altmann from Pixabay

Volunteering

In many ways, I see writing this blog as another form of volunteering that I do. My focus on health and wellbeing extends beyond this blog site, but I consider the site to be one of service to others. 

Like my other volunteer roles, I receive no compensation for producing this site, with the exception of any money I might make with Affiliate Marketing (more about that in a minute). I do this purely because I want to help others who are in Chronic Pain and who feel lost and alone and in need of information that might help make their lives better. 

My other volunteer roles include committee work for Surgical Quality Improvement, improving Clinical Resources for Patients such as updating Patient Information Sheets received when you are discharged from an ER and Laboratory Quality Control to ensure that Patients are receiving the best care possible when they are providing lab samples for doctor-ordered tests. I also sit on a Provincial Measurement Working Group that is creating a survey for Patients in British Columbia, Canada to ensure that their care received has been the best it can be. 

These roles, together with this blog, give me ample ways to help others, and that brings a lot of happiness to my soul. 

 

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Image by John Hain from Pixabay

Helping Myself

My final reason for blogging is purely selfish…I do this for me as well. It’s therapeutic to be able to write about what’s new in health care, or what I’ve been thinking about a certain subject. I love being able to tackle controversial subjects or bring emotional issues to light, such as intimacy when you are Chronically Ill. 

I consider myself lucky to be in a position where I can have some influence over others and perhaps introduce them to a treatment they haven’t heard of before. There’s nothing quite as satisfying as hearing back from someone who says “you changed my life” or “I really needed to read this”. It makes up for the research, the typing on days when my hands hurt and the work of coming up with new topics that will be of interest.

If you are a blogger, you understand what I’m talking about. If you are a reader, just let me say that having responsibility for you and what I’m producing for you is an honour I don’t take lightly. I want to make sure you’re getting information that benefits you and your health because I know what it’s like to live with Chronic Illness and I know the types of things that I’d like to read and learn from. 

Thank you for allowing me to share these thoughts with you. I appreciate your comments below, or you can always write to me using the Contact Form. 

I do this because I love it. I love sharing and helping others and I hope I’m able to continue for a long time to come. Remember…

There Is Always Hope

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Interview October – Derek

We continue our Interview October series with a guest I think you’ll enjoy. Let’s meet Derek Canas

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Introduce yourself and tell us a bit about you…  

My name is Derek most people call me D-REK I’ll explain that later. I’m 33 years old, and survivor of a congenital heart defect and open heart surgery. At sixteen years of age, I was diagnosed with Aids.

Chronic illness(es)/disabilities I have… 

Congenital Heart Defect called Transposition of the Great Arteries/ HIV/Aids

My symptoms/condition began… 

Symptoms of heart condition diagnosed at 3 months of age. Open heart surgery to correct it happened right after in 1985. I required 15 blood transfusions during surgery and recovery. During surgery, the SA node was damaged requiring a pacemaker to correct. After a 3 month recovery, I made it home but life began to show another hidden monster. I wasn’t growing at a normal rate.

My diagnosis process was… 

Heart was at 3 months HIV/Aids wasn’t discovered until the age of 16.

The hardest part of living with my illness/disabilities is… 

The Stigma surrounding HIV/Aids It makes relationships and friendships very difficult.

A typical day for me involves… 

Spending the day taking care of my two dogs and doing online advocacy from my website

The one thing I cannot live without is… 

Music I’m a DJ that’s were the D-REK name came from. So music has helped me through difficult times and made some great memories working in nightclubs

Being ill/disabled has taught me… 

I’m so much stronger than I ever could have imagined. I’ve been underestimated most of my life but I’ve always fought through whatever has tried to stop me.

What advice would I give someone recently diagnosed… 

Keep your head up things do get better. Don’t let the words in your medical records consume you. You can still chase your dreams and live a very full life.

My support system is…

Family they are great always keeping me laughing and having fun. I’ve been in some very scary situations over the years and we always found a way to find the funny moments.

If I had one day symptom/disability-free I would… 

Probably run wild. Life has tried to slow me down for a reason. I like work and if I could I’d go nonstop

One positive of having a chronic illness/disability is…

You learn the value of your health and how quickly it can fade away. You set boundaries and spend more time with those you truly care about. Little moments become something very valuable

My links are:

https://www.facebook.com/EndTheStigma912
https://twitter.com/DJDREK84
https://www.instagram.com/dreksangelsandwarriors/
https://www.youtube.com/channel/UCS8Ucb4xH9hJMwhngUOFaDg