I have another great interview to share with you today…please meet Shantay Marsh Thompson!
Introduce yourself and tell us a bit about you…
My name is Shantay Marsh Thompson, and I am 42 years old. I have two grown kids that are working, and one is in college. I spend my time taking online classes since I am not able to work. I spend my time in the house the majority of the time because walking too much makes my back hurt. I do not go to stores to shop. I shop online or if it is something personal that I need, I will go to Dollar General so I can get in and out. My mother does the grocery shopping for me.
One fascinating fact about me is:
That even though I am down with this illness, I continue to learn academically.
Chronic illness(es)/disabilities I have…
I have Fibromyalgia with chronic back pain, depression, Neuralgia, Arthralgia, and Dyslipidemia. The pain in my back is worse. I have trouble sitting and standing for long periods.
My symptoms/condition began…
In 2013 after being diagnosed with endometriosis. After I had my procedure, I started hurting badly after a month. I went back to my gynecologist and asked him to please give me a hysterectomy because I needed to work. I had to wait four months before I could get the hysterectomy, so I continued to work in pain. After I had my hysterectomy in 2014, the pain was still there. I worked for about a month then had to quit my job because I could not stand nor sit for long periods.
My diagnosis process was…
Terrible. I went through several doctors in Tuscaloosa, AL. Nobody would give me the help that I needed. I cried every day because my pain was so bad. The medicine they gave me, such as Tramadol did not do anything for me. I had to move back to Mobile County to find me a doctor that could help me. I found one, and he gave me some medicine that would help me reduce the pain some. It was June 2015 before I got a diagnosis.
The hardest part of living with my illness/disabilities is…
Dealing with the pain in my back. I have tried Fibromyalgia lotions and nothing seems to work good.
A typical day for me involves…
Laying in my bed watching tv or doing some schoolwork. I make myself go to the gym to at least once a week to do strength training and walking but I pay for it the next day.
The one thing I cannot live without is…
My Lyrica. I have bad nerve pain so I take Lyrica. After my daughter turned 19 in April, my medicaid ended so I had to go without Lyrica for some weeks and I was in pain.
Being ill/disabled has taught me…
How to appreciate life more and do not take anything for granted. I have worked since I graduated in 1995 and I never thought my working career would end in 2014.
My support system is…
My one friend, my family, my fiancé, my church family, and the FIBRO CONNECT Group.
If I had one day symptom/disability-free I would…
Get out the house and treat myself.
One positive of having a chronic illness/disability is…
Being thankful that it is not a deadly illness.
One final thing I want people to know is:
Fibromyalgia is real. I would not wish this pain on no one.
Today’s post is from Guest Author John Martinez. John is a writer from California who sufferers from chronic headaches and occasional migraines. He works for Axon Optics, showing migraineurs how to treat their condition using science and clinical research.
Migraines can be, for lack of a better phrase, a real headache. Once you start to feel the symptoms of a migraine coming on, it can be hard to get away from the tumbling snowball of pain, dizziness, and sensitivity hurtling towards you. People with migraines know how desperate attempts to find treatment can be.
Migraine glasses are a hot item on the market right now, but if you’re skeptical about whether they work to prevent or treat migraines, you’re not alone. This guide can help you decide whether or not migraine glasses are for you and how they can help relieve common migraine systems.
What Are Migraine Glasses?
Migraine glasses (also known as “precision tinted glasses,”) have FL-41 lenses to block out specific light wavelengths that trigger photophobia and light sensitivity symptoms. Photophobia and migraines are closely linked; many migraine sufferers find that migraine glasses relieve migraine symptoms or prevent common migraine triggers.
Let’s go back to a word that you might not have seen, but probably have experienced before: photophobia. No, it’s not the fear of photographs or selfies. Photophobia isn’t the fear of light either, but it is a word used to describe an extreme sensitivity to light. People with photophobia experience a range of symptoms. Some people may be only sensitive to bright lights, whereas different types of lighting (fluorescent, LED, sunlight, etc.) may be more triggering.
How Migraine Glasses Help Patients With Photophobia and Migraines
Experts at the John A. Moran Eye Center at the University of Utah Health Sciences Center have been studying the causes and effects of photophobia for quite some time. They discovered that certain wavelengths are more triggering than others. Blue-green wavelengths were most “dangerous” to people with photophobia.
These awesome Utah experts also discovered that a special type of lens filtered out these annoying blue-green wavelengths. These lenses (also known as “FL-41 lenses”) have a rose tint. Migraine glasses use FL-41 lenses to help people with photophobia get through the day or a migraine with mitigated symptoms and an increased tolerance to light.
These glasses aren’t just designed to be worn at the time of a migraine. A 2014 study revealed that three out of four migraine sufferers experienced light sensitivity throughout the day, even after they stopped experiencing migraine symptoms.
“Why can’t you just wear sunglasses?”
This last finding is especially important. Photophobia doesn’t switch on and off like a light switch. Moving from a dark to lit room can trigger photophobia. Long periods of screen time can trigger photophobia. Flashing lights can trigger photophobia.
Even if these lights aren’t particularly bright, they can still trigger photophobia – after all, people with photophobia have a lower tolerance for many different types of light. And it’s hard to determine when or where these triggers might appear in your daily life.
Many people ask themselves (or migraine sufferers) why they just can’t wear sunglasses to treat photophobia. For many people, the answer isn’t to make the room darker – it’s to avoid the types of wavelengths that are most triggering.
Plus, who wants to wear sunglasses 24/7?
Light Sensitivity Relief Helps Reduce Other Symptoms
The effects of migraine glasses aren’t just limited to light sensitivity. Often, migraine sufferers link light sensitivity to pain, anxiety, and discomfort. When walking into a room with bright lighting or looking at your work computer is more comfortable, your day becomes easier and you can avoid migraines triggered by stress or discomfort.
Migraine Glasses Aren’t Just For People With Migraines…
So the answer to our question (“Do migraine glasses really work?”) is: yes. But migraine glasses don’t just help people who suffer from migraines.
Migraine glasses have been tested and proven to help patients who suffer from benign essential blepharospasm (BEB.) People with BEB often experience rapid eye blinking or eye spasms. They also experience a similar type of photophobia as people with migraines.
Other studies have shown that migraine glasses can help to relieve photophobia symptoms in blind migraine sufferers and blind people with photophobia. That’s right; even blind people can experience migraines and sensitivity to light. Photophobia is much more common than you might think, especially if you have migraines.
Migraine Glasses Might Be For You
You might have read to this point and thought, “I don’t have photophobia, so these glasses probably won’t help.” Pump the brakes. Unfortunately, a lot of migraine sufferers don’t realize they have photophobia. Light sensitivity is often overlooked or misdiagnosed alongside all of the other insufferable side effects of migraines.
Researchers at the Baylor College of Medicine asked 84 migraine sufferers whether or not they suffered from photophobia. Twenty-four percent of respondents said they didn’t. After more questioning, the researchers discovered that over 90% of participants did experience some sort of light sensitivity or photophobia.
Talk to a medical health professional about the symptoms of photophobia and how they may affect your migraines.
Where To Find Migraine Glasses
When you start shopping online for migraine glasses, know that you will come across a very similar cousin: blue-blocking glasses. These glasses (also known as “blue light” glasses) help to filter out blue wavelengths that we absorb when we stare at screens. Users offer rave reviews of blue blocking glasses…but these users don’t always suffer from migraines.
The difference between FL-41 glasses and “blue blocking” glasses is that FL-41 glasses focus on the wavelengths that specifically trigger photophobia or migraines. These wavelengths can be found across the blue-green spectrum. There is no harm in trying blue blocking glasses, but people with photophobia may find migraine glasses to be more effective than blue light glasses.
Look for glasses that specifically have FL-41 lenses. Axon Optics, for example, are a popular brand of light sensitivity glasses (migraine glasses) that use FL-41 lenses to relieve symptoms of migraines and light sensitivity.
FL-41 lenses don’t just come in one type of frame or style, either. Migraine sufferers can even find relief in FL-41 contact lenses that have been recently developed for the market.
If you suffer from migraines, migraine glasses are definitely worth a try. Enjoy a life with decreased light sensitivity and reduced migraine symptoms. See the world through rose-colored glasses…literally and figuratively!
As we move into December and the start of the Festive season, it can be a time of great stress for those of us who live with Chronic Illness. I wanted to share some strategies for getting through this time of year without increasing your pain or stress levels.
Here are some of my top suggestions:
Plan In Advance
As Christmas, Hannukah and New Years get closer, it’s a good idea to start thinking about what you’ll do and where you’ll go. Are there family traditions that can be changed in regards to who hosts events? If it’s been you in the past that hosted a large group, perhaps someone else could do it this year and you could be the guest. Start to prioritize the things you most want to do (attend a Santa Claus parade, a Festival of Lights, Religious Services, visiting certain friends, etc.) and then build your schedule around that.
Keep Managing Your Chronic Illness
Once you have a schedule in place, you can start building in rest days before and after events. Don’t forget about the day of the events themselves and how you need to ration your energy to have the greatest chance of being able to participate.
Go to your scheduled doctor’s appointments and take care of yourself. It’s so tempting to cancel these things at this time of the year, but don’t. Make sure you are taking your medications as prescribed. If you have special dietary needs, keep them in mind when eating out and preparing meals. Now is not the time to go off a medically necessary diet.
Make lists of things you need or want to do. Prioritize those lists. Delegate and let some things go. Take advantage of online shopping to save your energy. And don’t be a perfectionist. There’s no room for perfectionism in a chronically ill person’s life.
If you know you have a party to go to in the evening, that morning is not the time to scrub out your tub. This is another area in which I struggle. Pace yourself throughout the day and over a period of several days. If you are planning on going shopping with friends on Saturday, plan on Friday and even Thursday being light activity days.
If you’re going somewhere else to celebrate and you have energy limitations, let your host know that you may not be able to participate fully in the activities. If you aren’t able to host at your house like usual, ask others to chip in and host instead. Being honest with people in your life about your limitations can be helpful for avoiding hurt feelings later. Think through what you need to explain to others ahead of time to allow the events to go smoothly.
Enlist The Help Of Your Spouse Or A Friend
Enlist the help of your spouse or a good friend to be part of your team during the holiday festivities. This should be someone who knows you well and will be able to read your responses to situations. This person will help you feel safe in the situations you’re entering and will watch for any indication that you aren’t feeling well.
My husband Ray, serves in this role for me. Another friend or family member could also do this. Basically, Ray notices when I’m getting worn down and my health is going downhill. He’s particularly aware of my flagging energy, and will often ask me how I’m doing to gauge whether it’s time to leave. I also know I can tell him I’m ready to go and he’ll take me home immediately if I need to leave.
Be Okay With Your Plans Changing
This one is a big part of normal life with chronic illness. Flexibility is important because things can change on a moments notice when health issues are a concern. Even if you have everything planned and scheduled, do yourself a favor and release expectations. If you are religious, prayerfully plan your schedule but then hold those plans loosely. Ask God to cover you with perfect peace in whatever situations you may encounter with your health over the holidays.
Ask For Help
Ask for specific things. I don’t like to depend on anyone for help, but if it means making the holidays more manageable, I think it’s worth it. Sometimes, people will offer to help, but they don’t say what they are willing to do. Having a list ready with ideas of what others can do for you will come in handy when people make those kinds of offers. Do you need help with laundry? Running errands? Housework? How about help with wrapping gifts? Think about all of your regular and holiday tasks and delegate some of them to family members and willing friends.
Connect With Others
Try to make time with friends you might not otherwise get to see, even if it’s just for a short while. Have a quick get together at a coffee shop, chat with a girlfriend about a sappy Christmas movie you’ve both watched. Make an effort each day to reach out to someone. Text, Facebook, instant message, make a phone call. You don’t have to carry on an hour-long conversation, just a brief connection can be enough.
Find “Me” Time
Build in some time just for yourself during the holidays to read, craft, rest or do whatever else will help to give you some “me” time. It’s important to recharge your batteries. If being surrounded by people is what energizes you, then do that…it’s all about what makes you feel good.
Make Time For Your Spouse Or Significant Other
It’s so important to carve out time for the two of you. With all the busyness going on around you, communicating can sometimes take a backseat, especially if you aren’t feeling so well. Be honest about how you are feeling and ask for help when you need it. Try to sneak in a few inexpensive “dates.” Drive around and look at the Christmas lights, stop for some hot chocolate, attend a Christmas program together. Just enjoy each others company.
Laugh As Much As You Can
This one is one of my favourite pieces of advice. Laugh. Just do it. I’ve found that no matter how horrible I feel, laughter can be a source of medicine for me. Laughing helps lift my spirit and makes me feel more alive. Try to enjoy yourself while you celebrate the holidays, and be sure to include laughter in your days!
Remember The Reason For The Season
It’s so easy to get caught up in the baking, partying, shopping, decorating, etc., but that’s not really what it’s all about. If you are a religious person, keep attending church services and go to the special holiday programs. Listen to religious Christmas songs along with the pop tunes. If you aren’t particularly religious or are a nonbeliever, meditate, attend holiday community events, and enjoy finding ways to nurture your own spiritual side.
I am taking part once again in the Stream of Consciousness Saturday posting and our word today is “ma” – either the word itself or a word containing it. I’ve chosen the word “marks” (in bold) as you will see below. Thanks to Linda G. Hill for her weekly SoSC postings
December 1st marks the day that many people bring out the Advent calendars. Filled with a chocolate or some type of goodie, children and adults alike enjoy opening these calendars to find the treat and mark down the days before Christmas.
If you are living with Chronic Pain, I’d like to give you your own Advent calendar. Instead of little treats, here are some ideas for Christmas or Hannukah presents that People with Chronic Pain would really enjoy receiving this year. Without further ado, here are 24 gifts, one for each day leading up to December 25th with links to suggested products on Amazon, to make the buying even easier: